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LONG-TERM HEALTH-RELATED QUALITY OF LIFE IN PEDIATRIC PATIENTS THAT RECEIVED CLINICAL PROFILES INFORMED CONCUSSION CARE

Abstract

PURPOSE: 1) To document long-term health-related quality of life (HRQoL) in former pediatric-aged patients who received clinical profiles informed care for concussion, 2) To explore HRQoL scores across the five concussion clinical profiles. METHODS: Twenty-seven former patients (M = 15.63 yrs; SD = 1.47; Range = 12-17; 67% female) completed an online survey battery that included current demographics, perceived recovery status (yes/no), and PROMIS measures (Profile, Global Health, and Cognitive Function) at approximately 2.73 yrs (SD=2.02; Range: 59 days to 6.30 yrs) after medical clearance from concussion. Descriptive statistics (means, SD, frequencies, and percentages) were used to summarize responses on demographics and perceived recovery/status. PROMIS questionnaires were scored via online scoring (e.g., HealthMeasures Scoring) and yielded T-scores for each participant. T-scores were compared to the US population normative mean (M=50, SD=10) and used to classify participants into Normal/Not Normal for PROMIS Global Health, Profile (Depressive Symptoms, Anxiety, Fatigue, Pain Interference, Physical Function Mobility, Peer Relationships), and Cognitive Function. PROMIS T-score classifications were also qualitatively examined across concussion clinical profiles that were extracted from the participant’s medical records. RESULTS: Ninety-six percent (26/27) of participants considered themselves still recovered from their previous concussion. The average T-score for the total sample for each PROMIS measure was considered “Normal” (i.e., within 1 SD of population mean). Further inspection of participant T-scores revealed that Depressive Symptoms (30%, 8/27) and Anxiety (33%, 9/27) PROMIS Profile domains had the greatest percentage of participants with “Not Normal” scores. Migraine was the most commonly assigned clinical profile, and the majority (> 80%) of participants within this profile revealed “Normal” HRQoL on all PROMIS outcomes. CONCLUSIONS: Although a small sample, long-term HRQoL functioning is “Normal” for most pediatric-aged patients who received clinical profiles informed care for their concussion.

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